When the Caregiver Needs Care: The Plight of Vulnerable Caregivers
Maryam Navaie-Waliser, DrPH,
Penny H. Feldman, PhD,
David A. Gould, PhD,
Carol Levine, MA,
Alexis N. Kuerbis, BA and
Karen Donelan, ScD
Maryam Navaie-Waliser and Penny H. Feldman are with the Center for Home Care Policy and Research, Visiting Nurse Service of New York, NY. David A. Gould, Carol Levine, and Alexis N. Kuerbis are with the United Hospital Fund, New York, NY. Karen Donelan is with the Department of Health Policy and Management, Harvard School of Public Health, Boston, Mass.
Correspondence: Requests for reprints should be sent to Maryam Navaie-Waliser, DrPH, Center for Home Care Policy and Research, Visiting Nurse Service of New York, 5 Penn Plaza, 11th Floor, New York, NY 10001 (e-mail: maryam.navaie{at}vnsny.org).
Objectives. This study examined the characteristics, activities,and challenges of high-risk informal caregivers.
Methods. Telephone interviews were conducted with a nationallyrepresentative cross-section of 1002 informal caregivers. Vulnerablecaregivers with poor health or a serious health condition werecompared with nonvulnerable caregivers.
Results. Thirty-six percent of caregivers were vulnerable. Comparedwith nonvulnerable caregivers, vulnerable caregivers were morelikely to have difficulty providing care, to provide higher-intensitycare, to report that their physical health had suffered sincebecoming a caregiver, to be aged 65 years or older, to be married,and to have less than 12 years of education.
Conclusions. Reliance on informal caregivers without consideringthe caregiver's ability to provide care can create a stressfuland potentially unsafe environment for the caregiver and thecare recipient.
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