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This Article Full Text Full Text (PDF) All Versions of this Article: AJPH.2004.051110v1 95/11/1889    most recent Submit a response View Shopping Cart Alert me when this article is cited Alert me when eLetters are posted Alert me if a correction is posted Services Similar articles in this journal Similar articles in Web of Science Similar articles in PubMed Alert me to new issues of the journal Download to citation manager Citing Articles Citing Articles via HighWire Citing Articles via Web of Science (21) Citing Articles via Google Scholar Google Scholar Articles by Bailey, D. B. Articles by Warren, S. F. Search for Related Content PubMed PubMed Citation Articles by Bailey, D. B., Jr Articles by Warren, S. F. Related Collections Disability Health Policy Screening

Donald B. Bailey, Jr, PhD, Debra Skinner, PhD and Steven F. Warren, PhD

Don Bailey and Debra Skinner are with the University of North Carolina, Chapel Hill. Steve Warren is with the University of Kansas, Lawrence.

Correspondence: Requests for reprints should be sent to Don Bailey, FPG Child Development Institute, CB # 8180, University of North Carolina at Chapel Hill, Chapel Hill, NC 27599-8180 (e-mail: don_bailey{at}unc.edu).

A fundamental tenet of newborn screening is that screening should lead to a proven benefit for the infant. The standard is usually construed as medical benefit that significantly improves a child’s health. Screening for many conditions that cause developmental disabilities does not currently meet this standard.

We argue for expanding concepts of presumptive benefit. Newborn screening provides access to early intervention programs that are shown to positively influence child development and support families. Consumers want information about their children’s health and their own reproductive risk, and they have a broader view than policymakers of what constitutes a treatable disorder. Newborn screening provides other societal benefits that, in the absence of data showing harm and with appropriate attention to ethical and legal issues, warrant consideration of an expansion of targets for newborn screening.

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