Research Recruitment Through US Central Cancer Registries: Balancing Privacy and Scientific Issues
Laura M. Beskow, PhD, MPH,
Robert S. Sandler, MD, MPH and
Morris Weinberger, PhD
Laura M. Beskow and Morris Weinberger are with the Department of Health Policy and Administration, University of North Carolina School of Public Health, Chapel Hill. Morris Weinberger is also with the Center for Health Services Research in Primary Care, Veterans Affairs Medical Center, Durham, NC. Robert S. Sandler is with the Department of Medicine and the Center for Gastrointestinal Biology and Disease, University of North Carolina, Chapel Hill.
FIGURE 1—Models for research recruitment through cancer registries
Note. This figure depicts recruitment models from the 33 (78.6%) registries through which research contact with patients was allowed; 9 (21.4%) registries did not allow such contact.
The number below each "branch" is the number of registries in that category.
The percentage above each branch is the proportion of registries from the immediately preceding node that were in that category. The percentages for the set of branches emanating from each node may not total 100% because of missing information. The percentages at the far right are the proportion of registries that used the model defined by following that branch back to the far left of the diagram.