CLINICAL AND ETHICAL CONSIDERATIONS IN MANAGING CARRIER DETECTION
Lainie Friedman Ross, MD, PhD and
Ellen Wright Clayton, MD, JD
Lainie Friedman Ross is with the Departments of Pediatrics, Medicine, and Surgery, and the MacLean Center for Clinical Medical Ethics, University of Chicago, IL. Ellen Wright Clayton is with the Departments of Pediatrics and Law and the Center for Biomedical Ethics and Society, Vanderbilt University, Nashville, TN.
Correspondence: Correspondence should be sent to: Lainie Friedman Ross, MD, PhD, University of Chicago, 5841 S Maryland Ave, MC 6082, Chicago IL 60637 (e-mail: Lross@uchicago.edu). Reprints can be ordered at http://www.ajph.org by clicking the "Reprints/Eprints" link.
Because this article has no abstract, we have provided an extract of the first 100 words of the full text and any section headings.
From the series HiddenPoverty in Illinois (2007) by photographer Kuni Takahashi. KandeeNeff, 19, reads a book on her bed on September 20, 2007, inthe trailer where she lives with her father Lee, 63, and motherSarah, 64, in Murdock, IL. Lee receives a disability check of$813 per month, and Sarah, who suffers from diabetes, earns$244 per month from her part-time job at Peace Meal but cannotafford the medication to control her diabetes. Printed withpermission.
In their commentary, Miller et al. challengethe prevailing consensus that carrier information discoveredincidentally in newborn screening should . . . [Full Text]