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AJPH First Look, published online ahead of print Oct 27, 2005
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American Journal of Public Health, 10.2105/AJPH.2004.053645

Field Action Reports

Cancer Disparities Research Partnership in Lakota Country: Clinical Trials, Patient Services, and Community Education for the Oglala, Rosebud, and Cheyenne River Sioux Tribes

Deborah Rogers 1 Daniel G. Petereit 1*

1 Rapid City Regional Hospital

* To whom correspondence should be addressed. E-mail: dpetereit{at}rcrh.org.


  Abstract

Native Americans served by the Aberdeen, Billings, and Bemidji areas of the Indian Health Service (IHS) have a cancer mortality rate approximately 40% higher than that of the overall US population. The National Cancer Institute has funded Rapid City Regional Hospital to provide clinical trials, behavioral research, a genetic protocol, patient navigator services (assisting patients with health care coordination and financial issues and helping them to understand their options), and community education for members of 3 western South Dakota tribes. Challenges faced by the project included obtaining multiple approvals from 3 tribes, 4 IHS facilities, and 5 institutional review boards; travel distances; lack of screening; red tape of referrals; and refusal by some payers to cover clinical trials. Building trust through ongoing communication and community presence is key to a successful project.

Key Words: Cancer, Health Service Delivery, Native Americans, Surveys




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