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American Journal of Public Health, 10.2105/AJPH.2004.058933
Health Policy and Ethics |
1 Johns Hopkins
2 Johns Hopkins University
* To whom correspondence should be addressed. E-mail: jsugarm1{at}jhmi.edu.
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Abstract |
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In response to the traditional emphasis on the rights, interests, and well-being of individual research subjects, there has been growing attention to the importance of involving communities in research development and approval. Of methods for involving communities, community consultation is particularly pervasive. However, the fundamental ethical goals of community consultation in particular have not been articulated, making it difficult for investigators, sponsors, and IRBs to design and evaluate community consultation efforts. Community consultation must be tailored to the communities in which it is conducted, but the purposes of consultation, the ethical goals it is designed to achieve, should be universal. We propose a set of four ethical goals that give investigators, sponsors, IRBs, and communities a framework for evaluating community consultation processes.
Key Words: Ethics, Genetics, Global Health, HIV/AIDS
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